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Coping with PAH / PPH
There is at present no known way to prevent or cure Primary Pulmonary Hypertension. However, many patients report that by changing some parts of their lifestyle, they can go about many of their daily tasks. For example, they do relaxation exercises, try to reduce stress, and adopt a positive mental attitude. People with PPH go to school, work at home or outside the home, part-time or full-time, and raise their children. Indeed, many patients with PPH do not look sick, and some feel perfectly well much of the time as long as they do not strain themselves physically. Walking is good exercise for many patients. Some patients with advanced PPH carry portable oxygen when they go out; patients who find walking too exhausting may use a wheelchair or motorized scooter. Others stay busy with activities that are not of a physical nature. For the PPH patient who lives at a high altitude, a move to a lower altitude--where the air is not so thin, and thus the amount of oxygen is higher--can be helpful. Medical care is important, preferably by a doctor who is a pulmonary vascular specialist. These specialists are usually located at major research centers. Primary Pulmonary Hypertension patients can also help themselves by following the same sensible health measures that everyone should observe. These include eating a healthy diet, not smoking, and getting plenty of rest. Pregnancy is not advised because it puts an extra load on the heart. Oral contraceptives are not recommended, and other methods of birth control should be used.
Most doctors and patients agree that it is important for both patient and family to be as informed as possible about Primary Pulmonary Hypertension. In this way everyone can understand the illness and apply that information to what is happening. In addition to family and close friends, support groups can help the PPH patient.
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